......HyperhidrosisAndMe.com is a website for those who have Primary Hyperhidrosis. Find and purchase clothing and products that can help you feel and look good, explore treatment options that can help you, and read about growing up and living with Hyperhidrosis from my personal perspective.
Blessings, Charmaine
Apr
15

Start a Website About Hyperhidrosis? Am I Nuts?

By Charmaine · on April 15, 2010

You may (or may not!) be wondering how and why I would choose to tell the whole world about my Hyperhidrosis by starting a website about it.  Here is how HyperhidrosisAndMe came to be:

Having hidden HH my whole life, I took a really drastic step in the summer of ’09: I made the decision to start up a website about Hyperhidrosis.  I was learning about affiliate marketing to help launch a business I was trying to start with 3 partners, when we decided it would be a quicker learning curve if I started my own blog first.  I will never forget looking at my sister (one of the partners), holding up my hands, and saying “I could blog about this.”   My sister’s eyes got big and she said, “Oh my God! Yes! It would be so good for you! And you could help people!” And in the heat of that moment I was like, “Yeah! It would help people!” Etc, etc, etc.  Then of course I rejected that thought because I didn’t think I could ever, ever “come out” in such a big–huge–way.  But the idea followed me and I couldn’t stop thinking about it.

I couldn’t stop thinking about my years of hiding and how much effort it had all been.  For what?  So that people would like me for who I wanted them to think I was, but indeed was not?  Why not be honest, really honest, for once in my life?  It was ironic, how I had painted a picture of myself that I hid behind:  my friends praised me for being a genuine person, for being sincere and honest.  Genuine and sincere, yet I couldn’t entrust any of them with the ugly, sweaty, embarrassing truth.  I know, it sounds like I’m being pretty hard on myself (I’m very good at that!); but that really is the way I lived my life.

The idea of living in integrity started to take root.  Some days I wanted to shake it off, though, because the reality of it scared me.  Some days I asked myself if I really wanted to immerse myself in a subject that I had spent my life denying.  Since my ETS surgery, I had tried so hard to put HH behind me despite the frequent episodes of CS.  Perhaps not having my hands sweat as often helped me put enough distance between myself and HH that it allowed me to delve into it; who knows?

After a month or so of going back and forth, I was in Door County, Wisconsin with my family and while on a walk/run (gotta be honest, you can’t call what I do “jogging”), a song on my iPod came on, and that was “it”.  I knooooowwwww how corny it sounds but it really happened this way!  The song is “Unwritten”; sung and co-written by Natasha Bedingfield.  I was on my usual route when I decided to hang a left and labor up a steep hill.  The song came on and there I was overlooking the beautiful countryside with the words in my ears blaring:

“Feel the rain on your skin/  No one else can feel it for you/  Only you can let it in/  No one else/  No one else can speak the words on your lips/  Drench yourself in words unspoken/  Live your life with arms wide open/  Today is where your book begins/  The rest is still unwritten….”

The rest of the song– pretty much every word– spoke to me just as clearly.  It really was a watershed moment in my life.  I don’t remember “walking” back to our resort– just getting to our room, grabbing a notebook and writing down what I intended to be my first blog post.  If you read my posts “Hiding In Plain Sight I & II”– indeed, the first posts on this site– except for a little editing, that is what I wrote on that July day.

Yes, I have had moments when I questioned the sanity of baring my soul to strangers.  I have been overwhelmed with the sheer amount of information I have had to sift through and the volumes of writing I have had to do to get this right.  Again, please forgive my “corny” moments here, but if you are reading this and you start to explore this site and it actually helps you, then I know I am doing exactly what I should be doing.

“Reaching for something in the distance/  So close you can almost taste it/  Release your inhibitions/  Feel the rain on your skin!”

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Comments

  1. Charmaine,

    Just love the site, how you have come out about your hyperhidrosis. I too as you know have battled most of my life and since making the two documentaries and starting up the website, support group has helped me to no end.

    I take my hat off to anyone who is willing to show how this humiliating disorder (disease) runs our every day life.

    I have a feeling we will always be friends from now on, you are a wonderful lady, stay strong my friend and keep fighting for the awareness in hyperhidrosis.

    Always,

    Anne x

  2. Charmaine says:

    Anne,
    You are an inspiration to me and I’m sure to the hundreds of members of your chat forum, http://www.VerySweatyBetty.com! I only hope that I can in some way improve the lives of fellow sufferers as you have been doing for these many years. I too feel that we have a bond now, and hope to make a formidable team. Thank you for instantly accepting and embracing my efforts, as freshman as they are. There is a long road ahead, but I am empowered that I will not be on it alone.
    Blessings,
    Charmaine

  3. Li says:

    Hey there!

    I think what you’re doing is awesome. I have always told people “I’m a sweaty beast. No, seriously,” but that’s nothing compared to how you have put it out there.

    I wrote one (1) blog post on my blog dedicated to my HH. That took a lot out of me. I don’t think I could do it again.

    Kudos to you to dedicate your blog to the topic, for people like me, who are not as courageous.

    Best,
    Li
    Twitter.com/LaLicenciada

  4. Charmaine says:

    Hi, Li!
    Thank you for that! Please take a step back and realize how you courageous you are. Acting? I thought I was stepping out of my comfort zone doing Voiceover. They asked me to consider on-camera and the thought terrified me. ‘Cause here’s the thing: people cannot hear you sweat, right?? That was my safety net. You jump without one every time you do a gig! You’re calling me courageous? I like italics today.

  5. Mallory says:

    Thanks so much for creating this site. Reading it helps me a lot! :)

  6. Charmaine says:

    Mallory, Thank you so much for visiting and especially for commenting… I love the comments!

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