......HyperhidrosisAndMe.com is a website for those who have Primary Hyperhidrosis. Find and purchase clothing and products that can help you feel and look good, explore treatment options that can help you, and read about growing up and living with Hyperhidrosis from my personal perspective.
Blessings, Charmaine
Oct
26

And The Truth Shall Set You Free

By Charmaine · on October 26, 2010

This is my first blog post in awhile; my computer’s hard drive sadly died!  I felt as though I had lost a limb while waiting to get back online.  While I was in Offline Land, I had an incredible experience that I would like to share with you.  I rarely talk about my life unless it involves my hyperhidrosis, so let me explain a bit of background pertaining to the circumstances of this experience…

I am a practicing Catholic and so grateful to have my faith.  My faith journey has been profoundly influenced this past year by a women’s retreat I participated in last November.  Wanting, well, needing to continue the journey after that incredible weekend, I joined the team that would host this year’s retreat.  I was blessed to bond with a team of amazing women over this past year and was inspired to contribute to the retreat experience by way of  “giving a Witness”.  Giving a Witness means that I would be sharing my life experiences and struggles, describing how my faith has defined those experiences and how that faith has helped me through times of trouble.

Throughout these many months I have struggled with whether or not I would have the courage to face a room of 40 or so women, many of them strangers or (worse!) acquaintances, and be open and honest about having hyperhidrosis.  I agonized whether it would be relevant, too uncomfortable, too personal… too hard.  Finally, I gave it over to God.  Duh, I should have done that to begin with, right??

So… Sunday morning, I stood at a podium and spoke of my life.  There were other difficulties to describe that were also of a personal nature and very emotional, but the moment when I said, “All my life, I have had a problem with sweating…” the feelings that came over me were nearly indescribable.

I explained that I felt like an outsider all my life, that I was convinced until recently that God could not possibly love me if He had made me this way; that there were 178 million other people in the world who were afflicted with this just like me.  I described the shame that ran so deep as to be nearly impossible to erase.

And I looked around that room, and what did I see in the eyes of those women reflected back at me?  Tears for my pain, empathy, love, and acceptance.

Two of those women approached me and confessed they have it, too, and asked me if I could help them.  Many others embraced me with words of support and admiration.

What was I so scared of?  I write about hyperhidrosis every day.  It is not so very difficult to be open on the faceless, anonymous world of the Internet.  I have gotten used to the general indifference and/or ignorance of hyperhidrosis online.  Being public about hyperhidrosis in the flesh and blood real world posed a completely different challenge for me.

The closing Mass was held in a room where we all sat together.  By the closing song, we were all standing, swaying, belting out “How Great Thou Art” along with Carrie Underwood… holding hands.  Well, I wasn’t.  I was laughing, fully in the moment filled with joy, with my arm around the shoulders of one sister and the grip of another’s lovingly on my wrist.  And it was awesome.

I waited my whole life for a moment like that.  And it did not disappoint.

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Comments

  1. [...] This post was mentioned on Twitter by Leilani Cooper, HyperhidrosisAndMe. HyperhidrosisAndMe said: And The Truth Shall Set You Free via HyperhidrosisAndMe.com – This is my first blog post in awhile; my … http://tinyurl.com/3xr3aqw [...]

  2. Dan says:

    Thanks for writing that. I wake up every night these days thinking of my condition and having to pray to go back to sleep. I pray that my mind will not go there and/or my body will meet with some relief. I am determined to continue to seek relief and will continue to write you with my experience.

  3. Charmaine says:

    Thank you. I think aside from the treatments to keep the sweating at bay, finding peace within is the best way to cope. If you can stop thinking “When I find a treatment that works, then I will be happy…” and just learn to find happiness in the here and now, your mind will quiet. Hyperhidrosis is a big fat nuisance and does not deserve the power to keep you from being happy in this life. I look forward to hearing from you!

  4. Maria says:

    Amen! I’m so proud of you for doing this. I gave a speech about HH in a college class. It was really hard, but afterward I felt like I didn’t have to worry about it anymore when I was in that class. The girl who gave a speech after me said that I was the second person she knew who suffered from this condition. And if you can get over yourself for a few minutes to share your story, it’s so worth it! It’s hard to hold in all that shame and embarrassment. And God DOES love you, and me, and all of us who have HH; He made us this way for a reason. Now the business is getting to that reason and living it out.

    I feel like without my HH, I wouldn’t be who I am. Yes, it’s annoying and difficult and shame-ridden, but I don’t think I could FEEL on the cellular level that I do without it. Have you heard of anyone else with HH also considering themselves a Highly Sensitive Person (HSP)? I know I am! There’s a great book by Elaine Aron on the subject of HSPs, and I when I read that I felt even more validated about myself and my sweaty body.

  5. Dan says:

    I agree and in many ways, although it seems strange, this condition has empowered me to grow in ways I would not have. Improving all areas of my life, and keeping the faith that I will not be afraid to seek out improvements to this condition. Right now my glass is half full, it used to be empty. I have the second half to fill, and i will.

  6. Charmaine says:

    Thank you for the affirmation. It is a great feeling hearing this from the ones who really know! I had not heard of HSP’s before– I may just check that out– thanks!

  7. Charmaine says:

    Positive thinking is something we all need more of, so I love hearing this :) Thanks, Dan.

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