Archive for Research
Research Study for Hyperhidrosis: UPDATE
Posted by: · on May 11, 2010 | CommentsSo, I signed up for the study that the docs at the Albert Einstein College of Medicine and Montefiore Medical Center are doing to research Hyperhidrosis. Their goal is to isolate the gene that causes Primary Hyperhidrosis. If they can figure out what causes it, they will have a better shot at figuring out how to actually cure it. A c-u-r-e. Can you imagine? It would put me out of business. HAPPILY! I could start a blog about all the new shoes I could be able to wear!
The study is easy to participate in. After you contact Betsy Vibert at sweatypalms@aecom.yu.edu, you receive a large white envelope in the mail. It contains very easy-to-understand instructions, duplicate forms of consent and HIPAA, and a questionnaire. The questionnaire can be filled out in about 15-20 minutes, and seriously, it is pretty easy. The mouthwash and collection cups are in a ziploc bag with very simple instructions. The hardest part of the whole thing for me was to remember to swish with the mouthwash before I brushed my teeth in the morning! You do that two mornings in a row, follow the instructions, pop everything into the prepaid envelope, and drop it at the post office. EASY. And when…not “if”…. they find a cure for Hyperhidrosis, you can say that you were a part of it. So be a part of history!
Research on Hyperhidrosis– You can help!
Posted by: · on April 19, 2010 | CommentsThere is so little known about how and why people like us are afflicted with Hyperhidrosis. That is why I am so pleased to tell you that there is now a study being conducted that you can participate in! It appears that it takes very little time and effort to get involved. Here are the details:
Researchers at the Albert Einstein College of Medicine and Montefiore Medical Center are attempting to identify the gene or genes responsible for hyperhidrosis. Drs. Burk and Keller are collecting mouthwash samples and asking participants to complete a short questionnaire in hopes that this information will enable them to identify the responsible gene. Small amounts of DNA can be obtained from the mouthwash specimen and this information can then be correlated with the information in the questionnaire. They are hopeful that this knowledge can then be used to help create more effective treatments for this debilitating medical condition.
Individuals who suffer from hyperhidrosis, as well as both affected and unaffected family members, are eligible to participate. All information is kept confidential and travel is not required. The study kits are sent through the mail, and participants return study materials to the researchers in a stamped self-addressed envelope. If you are interested in helping with this research, please contact Betsy Vibert MS, CGC at their toll free number, 877-444-2525 or by email at betsy.vibert@einstein.yu.edu.
My “kit” is on its way to me. Once I complete the questionnaire and send it in with my sample (and my mom and sister too!), I will write a post about it.
Hyperhidrosis gets so little attention in the world of research– lets take this opportunity to find out more about this debilitating disorder! If they can figure out the cause, maybe they can find a real cure.
Thanks & as always Blessings 
Charmaine
